https://nova.newcastle.edu.au/vital/access/ /manager/Index ${session.getAttribute("locale")} 5 https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:33796 'They are the priority' overarched two subordinate themes that emerged from participants' descriptions of the struggle with acceptance and finding positive meaning. Participants oscillated between conflicting feelings about their sibling with 22q11.2DS always taking centre stage. For example, they felt anger, guilt and resentment; yet, they also embraced patience, empathy and gratitude. Conclusions: This phenomenological study provides a foundation for future research relating to 22q11.2DS and fostering family wellbeing, particularly around acceptance and psychological growth. The siblings in this study actively withdrew from their family to allow prioritisation of their affected sibling. However, this does not mean that their needs should be overlooked. There are easily accessible resources to support siblings of individuals with disabilities, and it is important for health professionals and parents to consider these options.]]> Tue 15 Jan 2019 15:31:49 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:53636 Tue 12 Dec 2023 16:00:49 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:502 Thu 25 Jul 2013 09:10:33 AEST ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:1760 Sat 24 Mar 2018 08:27:27 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:28504 Sat 24 Mar 2018 07:29:15 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:28120 Sat 24 Mar 2018 07:24:57 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:24729 Sat 24 Mar 2018 07:10:57 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:23139 Sat 24 Mar 2018 07:10:25 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:51683 Fri 15 Sep 2023 09:37:01 AEST ]]>